Wednesday, January 27, 2016

Where to start....
Well all of you should know that I am a mom and I am not the best at grammar so please forgive me and read on! I'd just like to say that my journey to be a mom started in a kind of crazy way about 1 year ago. I found out I was pregnant with my first child and I was very excited and nervous. Everything was just going swimmingly, then one day I got a phone call... duh duh duh!! The doctors thought something was wrong with our precious baby girl and suddenly my world went into chaos and panic, they told me to stay calm but that was easier said than done. About a week later I found out that my daughter had water on her brain, a large hole in her heart, the blood flow from my placenta to her was also flat lining and they thought she might not make it, and they suspected that she had Down Syndrome, I was devastated and I did not want to believe that this was happening to me. The TRUTH was it was happening to me and even if I loved God that didn't exclude me from the world that I live in. wah wah wah! We started a series of ultrasounds that went on from June through September starting one time a week and gradually having to go to the hospital twice a week.
   On September 14th, 2015 I went in for my weekly routine of being checked on and the nurse asked me if I noticed that Eden was not moving around as much as usual and I said yes but I thought it might have been just because we had a very busy week and we were both tired. Needless to say they decided to induce me that day at 37 weeks gestation! WOW! I had Eden after 54.5 hours of contractions and labor, I gave into the epidural after 49 hours and no shame in that lol! Eden was born on September 16th at 8:53 pm. She was and is beautiful and perfect in my eyes! She was doing great after delivery and got to stay with us the entire time, no NI CU!
The next day Eden had a brain scan and it came back normal. The doctors also did an ECHO on her heart and they did see a large VSD ( ventricular septal defect )  but she was still fighting like a champ! Over the next three and a half months of her life we had a lot of cardiologist appointments to keep an eye on her.
We quickly realized this little heart was probably going to need OHS (open heart surgery). As a new mom I lived three months of my life in complete fear of the unknown for my daughter, I'm still working on that! Our last appointment was December 21st and we were told that Eden would require an OHS in about two weeks. By that time I had made peace with one of the scariest things I've ever had to go through.


Eden does have DS (Down Syndrome) but listen people it isn't that scary.  Eden is a little girl who is going to do what other kids do, she just has an extra chromosome and that's okay to! And I am JUST a mom who wants to do what all the other moms are doing and talking about.

God Bless!!!

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